#chroniccondition

6,346 Posts Share

(adsbygoogle = window.adsbygoogle || []).push({});

Pole fitness starting next wednesday that’s what’s up! Probably haven’t been to practice in over a year now, wonder how it’ll turn out 🤩🤗 . . —————————— #newtimes #polefitness #adonisbaths #paphos2018 #cyprus2018 #dancerslife #chroniccondition

Share 306 34
spoonie_village. #fordayswhenyoudonthavetheenergytosayit  Due to symptoms it can be har

#fordayswhenyoudonthavetheenergytosayit Due to symptoms it can be hard to keep on top of letting everyone know there’s no change or you’ve had a bad time of it lately. I’m having quite an okay time lately after the hell of the last few months but, this came about as a kind of sarky reply to a comment I’ve heard often when I had to take a break from things the whole “ooh I thought you’d disappeared ha ha” thing. Truth is nope, we don’t disappear we go into the difficult place where managing illness and life is the only focus so you can make it through the day. No disappearing acts or choosing not to turn up or take part, it’s called survival mode and without it we’d never again have the energy to show up at any time. Never feel ashamed or wrong for taking time out to recover, rest and get yourself back to a point of your normal, because I always find too those people who make such passing comments are never the ones to check up on your wellbeing or show concern anyway, rather they’d just make a dig about it because it’s just a complete lack of understanding what you go through and they often have very little interest in actually finding out. It’s okay to put your needs first. 💖

Share 2027 39
ioana_fit. This was highly requested so please read 👇🏻 classic symptoms of LIPO

This was highly requested so please read 👇🏻 classic symptoms of LIPOEDEMA. Also please leave your questions/comments below and I would love my girls who already have it to help me answer . __ 1. Lipedema occurs almost exclusively in women __ 2. Lower body is affected ( may extend to arms also in some cases ) __ 3. The ankles and feet are not affected __ 4. Fat accumulation is symmetrical ( just like the normal weight gain, that’s why most of the time is confused with being fat ) __ 5. Fat feels abnormal and painful : fat areas resulting from lipoedema tend to be very tender if you apply pressure and are easy to bruise __ Will post more often about this topic as I get a lot of messages about it. In case you already have it leave below a comment with how you’ve been diagnosed so we can help other women 🙏🏻 #lipedemafighter __ Please note that I will only leave the comments related to this condition/body positivity. Want the post to be as informative as possible

Share 35668 396
spoonie_village. Day 2 of #Februaryselfloveseries Okay hands up, who finds it hard to s

Day 2 of #Februaryselfloveseries Okay hands up, who finds it hard to say “I’m proud of myself” or “I’m proud I did that” ? 🙋🏻‍♀️ I know I do! It’s so hard isn’t it? Whether it’s something you did or something you didn’t do it’s okay to be proud of yourself and acknowledge that!⁣ ⁣ It’s not big headed if you’re acknowledging it for self acceptance,what I mean is you’re not proud you beat someone to something or proud you did better than someone else etc, you get the idea, that is being boastful and pretty much comes from a place of low self esteem if you’re competing with others to make yourself feel better and then proud of that for doing it for those reasons.This is the big difference. It’s not big headed to say to yourself “I’m proud of myself today for resting when I needed too” or “I’m proud I can do this” or “I’m proud I did x,z,z today” for example today I’m proud I set time aside for not being on Instagram because I did need it. ⁣ Pride as an emotion is a funny topic because it’s often seen as a bad thing because of exactly what I’ve discussed above. Also, we are told not be so big headed a lot growing up which is heavily linked to being proud because of the reasons discussed above but... the point of today’s post is this, we often don’t like ourselves because we are consciously or unconsciously comparing ourselves to others all too often which can lead to the wrong kinds of being proud. But what if instead you used being proud of yourself as encouragement to yourself? As acknowledging you’re doing right by your needs, or abilities. That to say you’re proud of yourself for who you are or because you achieved something that will help you and potentially others. ⁣ Ultimately self love naturally starts with us but by accepting our skills, abilities and us as just ourselves the need to compete disappears gradually because we are comfortable with ourselves and so pride comes from a loving place and encourages us to keep going. Make sense? ⁣ It’s tricky to put into words and it’s a sensitive topic but I wanted to discuss this as a self acceptance issue when living with illness. What are you proud of yourself for? 💖

Share 2394 55
Advertisement
(adsbygoogle = window.adsbygoogle || []).push({});
spoonie_village. So yesterday didn’t go as planned... a day late but it’s never a wrong

So yesterday didn’t go as planned... a day late but it’s never a wrong day to talk about gratitude really! As someone who has a daily gratitude practice I wanted to make this post about stripping it back to basics. Often we are so caught up in surviving and getting through each day it can be easy to miss the chance to be grateful for the very basic things we have access to and taking them for granted. That’s not a dig or saying oh how bad of you, no no, it’s about saying we all do it, me included! I mean how many times do we struggle to take a shower because it’s so draining and the focus is on getting it done (and there’s nothing wrong with celebrating when you do!) yet, how often are we simply grateful we can just switch a shower on and have clean fresh running water to shower in when we are able. Or how many times do we flush the toilet and be grateful we have the plumbing and structures in place to be able to do this without thinking. Another is having a well lit house. We don’t think much about switching on a light anymore until we can’t. The list is quite endless once we get started. The point of this post today is to think about gratitude of course, but also express gratitude for all the little things that pass us by that if they were to not be there or stop functions would make our lives ten tones more difficult. I have added a few personal ones here so totally appreciate if not everything resonates with you! Our blessing and gratitude are personal to each and everyone of us, but this post is here to remind you even on the worst of worst days we still have so much to be grateful for if we take a minute to look at our daily life 💖💖 I’ve added a gratitude story template (which now makes sense 😉) for you to fill it with gifs/emojis/words that can be used anytime you like to express your gratitude! Simply screenshot and go, feel free to tag me, it would be great to create a gratitude train! Because the best thing about it is it can’t ever be used up, the more gratitude we put out there the more we create and encourage others too! 💖💖💖

Share 5451 106
chronicloveclub. CLC MEMBER FEATURE: Hello, I’m Brianna and I’m 18 years old. In June 2

CLC MEMBER FEATURE: Hello, I’m Brianna and I’m 18 years old. In June 2015 I was an active 15 year old girl with no cares in the world. One month later I was diagnosed with a type of congenital heart disease, called dilated cardiomyopathy. Later that same night I went into cardiac arrest. • Everything went black, and two weeks later I woke up with a seven inch scar down my chest and a machine doing most of my heart’s work. It wasn’t until then that I realized how serious my condition was. By the time of diagnosis, I was in the end stages of heart failure and needed a transplant to survive. • After two months of having my LVAD and being listed Status 1A for Transplant, I received my gift of life on September 19, 2015. Today I have had my heart for over two years and it is still functioning well with no heart rejection. • That’s not to say life post-transplant has been perfect. In May of 2016 I was diagnosed with PTLD (Post Transplant Lymphoproliferative Disorder), a rare type of lymphoma that only transplant patients can get. Since then I’ve had a tonsillectomy, an appendectomy, a bowel resection, and I’ve fought through stage two heart rejection. Despite these complications, I can say with complete certainty that my new heart has given me more fun and adventure than ever before. • My hope is that one day no child will be born with a CHD. Until then, I’m going to put as much effort as I can into spreading awareness. To anyone going through a tough time, I know it can be hard, but don’t give up hope! If anyone feels like chatting feel free to message me and I’ll do my best to respond ASAP. #ChronicLoveClub

Share 824 45

And just like that, the patches all start to join into one... // #psoriasiswarrior #getyourskinout

Share 209 31
spoonie_village. Just some truths I’ve encountered on this journey... sometimes when I

Just some truths I’ve encountered on this journey... sometimes when I write/draw things I do sit back and wonder am I the only one thinking this and should I really post this 🤔 Your responses to stories and posts lately have convinced me to keep posting. This again fits in line with an experience I had with a so called “friend” yesterday. The expectation to not be ill anymore is too big or your illness is nothing because they have a job and a life to live. Let me point out I’m not talking about those general life conversations, but the ones that are created by them for a “who has it worse” match or to make out your life is a breeze compared to theirs as it’s just so busy. They think you chose this life, that living without big improvement is a choice, but the reality is when you have your health your choices are your own, if you’re not happy with your own life change it completely, you are your only obstacle. While I believe and acknowledge even when you have an illness you to are responsible for your happiness, there are still things that must be sacrificed and you have no say in because it ultimately comes down to your health whether or not you can physically do something about it. There are huge differences between choices made and forced circumstances you’re learning to handle. For me, I’ve learned that when you encounter this, no matter how long you’ve known a person it rarely ever changes. It’s time to say no thank you I don’t need that added to the burden, I’m responsible for my life and you are yours. It’s time to move on, because for every person who does this there will be a dozen more who don’t. People who even if they have health still give respectful, mutual grown up conversations about the difficulties life has for everyone without competing or belittling. Sorry it’s a long one, but I just feel it needs to be said. Rant over ☺️💖💖

Share 906 97
ioana_fit. WHAT IS LIPOEDEMA/LIPEDEMA? Please note I found out about it FROM SOCI

WHAT IS LIPOEDEMA/LIPEDEMA? Please note I found out about it FROM SOCIAL MEDIA so please tag or share this post with whoever you believe may have it . __ Is a disorder where there is enlargement of both legs due to deposits of fat under the skin. The cause is unknown but it is believed to involve genetics and hormonal factors, it often runs in families. __ Please leave your questions/comments below and I would love my girls who already have it to help me answer . __ Symptoms 👇🏻 1.It is usually triggered at puberty, however can trigger or worsen during or after pregnancy __ 2. Lipedema occurs almost exclusively in women - it is estimated to affect up to 11% of the women __ 3.Lower body is affected ( may extend to arms also in some cases ) __ 4.The feet are not affected and ankles depending on the stage __ 5.Fat accumulation is symmetrical ( just like the normal weight gain, that’s why most of the time is confused with being fat ) __ 6.Fat feels abnormal and painful : fat areas resulting from lipoedema tend to be very tender if you apply pressure and are easy to bruise __ In case you already have it leave below a comment with how you’ve been diagnosed so we can help other women 🙏🏻 #lipedemafighter __ Please note that I will only leave the comments related to this condition/body positivity. Want the post to be as informative as possible 📸@fireshone

Share 34314 466

Ever left a doctors appointment and thought what the f*ck just happened? 🤷🏻‍♀️ One of my services is a half hour phone or facetime consultation to debrief after Doctors visits 📞 This call provides understanding with professional and personal experience, knowledge and compassion to guide and assist in working through the information provided and the emotional impact it has had on you 👉 Follow the link in my bio to get in touch for a consultation today ⭐️

Share 14 2

Did you see my #valentine to you? A #newblogpost dropped yesterday & I couldn’t be happier to share this content with you! #chroniccondition or not #ivtherapy is becoming a mainstream #selfcarepractice & I’m revealing all (including your burning questions about dependency)🦄 Needles make you faint? I’ve got you covered. Go to my #linkinbio to get the deets #happyfriday #contradictionqueen #spooniegoals #potsie #dysautonomiastrong #ncs #ehlersdanlossyndrome #healthyhippie #naturalremedies #ivhydration #upgrademe #getupgraded

Share 17 1
crazycreolemama. Community is the foundation of all things. I was taught to live in, wo

Community is the foundation of all things. I was taught to live in, work in, thrive in, give back to it, share it and love it. That though we live in sub communities of culture, region, gender, religious, etc, we are all one in the scheme of things. I’m appreciative of my community of family. Who acknowledge my disease, and fight it by giving to organizations like @crohnscolitisfoundation / @crohnscolitisfoundationla who are actively working on funding research and development for treatment and cures of #ibd. Who have been on the forefront of the IBD legislative battle and support patients like me, in having a better quality of life. Thanks, GG (@cleonia_ ) for making a donation in my name. And helping me fight back against #ulcerativecolitis ! ❤️ • • • • • • • • • • • #ibdmoms #donate #charity #crohnsdisease #jpouch #ostomy #autoimmunedisease #chroniccondition

Share 40 5
mendmeshop. What can a Back/Hip T-Shellz Wrap® Treat?

Practically any condition o

What can a Back/Hip T-Shellz Wrap® Treat? Practically any condition or injury affecting the back, hips, and core muscles can benefit from treatment with the Back/Hip T-Shellz Wrap. sciatica pain back muscle strain, spasm or cramps lumbar pain trochanteric and ishial (hip) bursitis piriformis syndrome herniated disk pain hip pointer injury tissue damage due to hip dislocation or fracture snapping hip syndrome iliotibial band syndrome (ITBS) hip tendon strain or tear hip labral tear osteonecrosis in the hip joint upper and lower back pain post-operative recovery tendonitis, tendonosis, tenosynovitis lower back/hip/buttock pain other soft tissue injuries and chronic conditions #mendmeshop #tshellz #hip #hippain #hipreplacement #rehabilitation #healing #surgery #softtissue #chronicpain #illness #chroniccondition #lowerback #buttock #glute #operation #surgery #tendonitis #tendonosis #tenosynovitis #hipjoint

Share 14 0
madeleinethriftvip. Eradicating loneliness by talking to my phone!
.
A little update from

Eradicating loneliness by talking to my phone! . A little update from @thriftvip HQ just to check in and say hi 👋 . Feeling a little better than I did Monday but still not well enough to venture out yet. Several more days I think. . So what have you been up to this week?

Share 7 3
showyourlovetoday. There is power in a positive outlook: I could easily be frustrated and

There is power in a positive outlook: I could easily be frustrated and annoyed that @myomnipod woke me up at 4:45 AM on a Sunday because I needed to change my site 🙄, or I can be thankful that it did because otherwise I would’ve woken up (or potentially not even woken up if we’re being honest) to some very high blood sugars 🙅🏼‍♀️I’ll choose the first option thank you....and maybe just take a nap later today 😋 #t1dlookslikeme ・・・ Repost @thebeautyintypeone. #showyourlovetoday #t1d

Share 28 4
patients.engage. @shwetac.illustrations was diagnosed with bone cancer as a teenager. R

@shwetac.illustrations was diagnosed with bone cancer as a teenager. Read her story about her decade of survivorship as she looks back on the years with #gratitude and #optimism. Link in bio

Share 24 3
eleanordiplockodus. Amazing news today. DVLA have published new guidance for drivers with

Amazing news today. DVLA have published new guidance for drivers with insulin treated diabetes. We are now able to use FGM (flash glucose monitoring) like the Libre (pictured) to test sugar levels prior to starting any journey and to check during long journeys. This is incredible news for a lot of Diabetics! It has been a long time coming and it shows how effective petitions and communication is. Have a read using the link below and in the comments for further information on this new guidance and what it means! https://assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_data/file/778023/inf294-a-guide-to-insulin-treated-diabetes-and-driving.pdf #diabetes #fgm #libre #freestylelibre #flashglucose #insulin #typeonediabetes #typeone #injections #pancreas #deadpancreasgang #chroniccondition #chronicloveclub #diabetic #bloodsugar #sugarlevels

Share 18 1
Advertisement
(adsbygoogle = window.adsbygoogle || []).push({});
onlinetrainingwitht. It's Storytime Thursday Here at Online Trainig with T! That means we s

It's Storytime Thursday Here at Online Trainig with T! That means we share one story from someone with chornic ongoing issues who turned to natural techniques to help their body heal. "I knew I had to fight. I had to be strong for my son!" These were her words, when she couldn't ignore her symptoms anymore. More of the story later today! ALSO YOU DO NOT WANT TO MISS THIS UPCOMING WEBINAR ON HOW TO GET UNTUCK AND HEAL NATURALLY! SIGN UP HERE...https://goo.gl/forms/AyPZFq8TxCcrO4Lv1 #storytime #itsstorytime #storytimethread #storytimes #storytimethursdays #invisibleillness #invisibleillnessawareness #chronicillness #chroniccondition #chronicpain #chronicpainwarrior #holistichealing #naturalhealth #naturalhealing #holistichealthcare #holistichealth #wellnessjourney #wellnessthatworks #detoxify #herbalremedies #selfcare

Share 24 2
imbuilt4this. Before the beards and titanium implants... Did you know I'm an identic

Before the beards and titanium implants... Did you know I'm an identical twin? My brother was diagnosed with a herniated disc and spinal cord compression at the C4 level 18 months before I was.... Can you guess which one is me? #WonderTwins #EvilTwins #EvilTwin_719 #StrongSuitGame #ThrowBackThursday #NeverBreakin #FourTimeSpinalFusionChampion #CervicalLaminectomy #EveryDayStruggle #SpinalFusion #PainManagement #DegenerativeDiscDisease #SpinalCondition #CervicalFusion #LumbarFusion #BackProblems #CervicalStenosis #LumbarStenosis #NerveDamage #ChronicCondition #ChronicPain #Spoonie #InvisibleIllness #ChronicIllnessAwareness Follow my blog: https://builtforthis247365.wordpress.com/

Share 22 2
faithnself. Back again. Regular appointments are important. #doctorsoffice #paincl

Back again. Regular appointments are important. #doctorsoffice #painclinic #chroniccondition #chronicillness #followup

Share 6 0

Yesterday I had my follow up appointment with my rheumatologist. He talked me through my mri scan, which I had to do a few weeks ago, took some blood and then he explained the next treatment steps with me. He starts me on a med called Etanercept. That's a biopharmaceutical that treats autoimmune diseases by interfering with tumor necrosis factor by acting as a TNF inhibitor. (Thx wiki.😅) In order that I can start that med I had to get a chest xray done, which I did right after that appointment and the doc has to wait on specific blood count results. The xray and blood counts (espacially to rule out a TB) has to be done before starting with it, because it acts immunosuppressive. It's only given by injection once a week. 💉 I'm not looking forward to that, but I'm glad that I don't have any problems with needles and when it's helping with the ankylosing spondylitis pains and stuff I'm happy to get this going...💪 My doc will call me when he has the blood results in and when they are clear he sends me the prescription for it. Oh and the woman on the second picture is my wonderful mom, who drove me to this appointment and made the waiting time a little funnier...I have told her that I'm taking a picture and that's the face she made...Love her! 😂❤ #ANKYLOSINGSPONYLITIS #ankylosingspondylitis #ankylosingsponylitisawareness #autoimmunediseases #autoimmunediseaseawareness #rheumatologist #rheumatism #rheumatology #docappointment #chronicillnesswarrior #chronicillness #chronicovercomer #chroniclife #chronicpain #chroniccondition #ichoosejoy #dowhatyouthinkyoucantdo #dontforgettolaugheveryday #lovemymom

Share 39 3

since i was 10 i’ve been struggling with a condition called Benign Paroxysmal Positional Vertigo (bppv). it looks like i’m just sleeping but this is what a flare up looks like. essentially, some days i wake up and the whole room is spinning making me bed ridden for the entire day while trying to recover. unfortunately there is no cure, only ways to manage it with medications, physical therapy maneuvers, and working to improve my balance through strength & core training. my bppv may take me down for the count today, but i won’t let that stop me from continuing forward ✨ . . . . . #BPPV #vertigo #vertigosucks #sickdays #bedridden #chroniccondition #downwiththesickness #mindfulrest #sleepallday

Share 25 5
psoriasisuk. Here at the Psoriasis Association we are committed to funding the best

Here at the Psoriasis Association we are committed to funding the best quality psoriasis research, but what is the true impact of these projects? . One of our main aims has always been ‘to promote and fund research into the causes, nature and care of psoriasis and to publish and disseminate the results of that research’, and our commitment to this aim has led to the funding of over 200 research grants so far. . While we know what the results have been for these projects, their real impact extends far beyond this - from research publications, to allowing researchers to gain further funding, raising awareness through outreach activities, or influencing policy and practice. . To capture all the various impacts from our more recent research projects, we will be using Researchfish - an online platform that allows researchers and funders to collect and track the outputs from research projects that they have been involved in. . Using Researchfish will allow us to tell you the wider story of how Psoriasis Association funded research has made a difference – after all, we wouldn’t be able to fund this research without you! . Click on the link in our bio to find out more. . #psoriasis #research #psoriasisresearch #PsoriasisAssociation #psoriasisuk #researchimpact #psoriasisawareness #livingwithpsoriasis #chroniccondition #longtermcondition #psoriasishelp #psoriaticarthritis #psoriasissupport #psoriasiscommunity #psoriasislife #psoriasisproblems #scalpsoriasis #plaquepsoriasis #guttatepsoriasis #pustularpsoriasis #nailpsoriasis #palmoplantarpustulosis #psoriasiscare #fundingresearch

Share 52 1
ms.and.me. So this May, I plan to return to this spot and raise money for the MS

So this May, I plan to return to this spot and raise money for the MS Trust along the way! 🎗 as part of the Miles for MS challenge, I aim to climb four mountains in the Brecon Beacons...a HUGE ask and I think I must have blanked out the trips, falls, tears, clonus, and borderline despair from my mind, otherwise I’m not sure I could do those walks again!! I’m expecting the walks to be punishing but when I (hopefully) reach the top - oh so rewarding!! 💕 if anyone would like to donate to my page and help me raise as much as I can for the MS Trust, here is the link 😘 https://miles-for-ms-2019.everydayhero.com/uk/catherine #mstrust #milesforms #challenge #fundraising #fundraiser #mswarrior #mswarriors #strongerthanms #beams #erasems #walkms #multiplesclerosis #multiplesclerosisawareness #chroniccondition #chronicillness #chronicdisease #keepmoving #nevergiveup

Share 57 3

Anxiety feels like you are constantly on the brink of either collapsing or exploding. ⁣ ⁣ Your stomach is always in knots. ⁣ There is a restlessness that permeates every inch of your being. ⁣ Every unexpected noise or movement startles you. ⁣ Everything & everyone seems to agitate you. ⁣ Your jaw and muscles are sore & achy from being tense all the time. ⁣ Sleep is a torrid affair. ⁣ Exhaustion is unrelenting. ⁣ ⁣ You doubt & second-guess every thought in your head. ⁣ You doubt every word that comes out of your mouth. ⁣ You focus on every worst-case scenario. ⁣ You worry & worry & worry. ⁣ ⁣ It makes you think negatively of people you care about.⁣ It makes you believe the worst about yourself. ⁣ It makes you seek & fixate on every hole & crack in positive situations. ⁣ It makes you nervous, pressured, suffocated & uneasy. Sound familiar?⁣ ⁣ Anxiety is intrusive, destructive & isolating. Left unchecked, it will sabotage your health, relationships, work & sense of self. It creates an illusion of yourself & life cloaked in fear disguised as perfectionism, ambition, procrastination, laziness, arrogance, shyness, problem-solving, confusion, depression & fatigue.⁣ ⁣ Anxiety was a dominant adversary for most of my life. I didn't understand how ingrained it was in me until I had my first panic attack in my early 20s. Still, even after I realized I had anxiety, it didn't resolve. I continued to live with it, hide it & loathe it. ⁣ ⁣ Finally, in the company of late-stage cancer and death, it unraveled. Its grip on me loosened when I was afforded genuine perspective as my late husband's life inched closer to its end. Nothing mattered but love. Nothing. ⁣ ⁣ Anxiety was a needless obstruction to the most important thing in life. It held me back from receiving, giving & understanding the depth & truth of real love. At long last, I recognized it as fear & knew if I didn't release it, it would deprive me of genuine living, blessed with & supported by the limitless power of love. ⁣ ⁣ Do you need help transforming your anxiety? DM me for more information about how my private or group coaching can turn your fears into liberating love.

Share 95 12
project_sleep. 💗 Your Tuesday reminder from Lauren, an elementary teacher, mom, wife

💗 Your Tuesday reminder from Lauren, an elementary teacher, mom, wife and narcolepsy warrior living in New Jersey! . 💡The creativity of our community never ceases to amaze us! . . . . #narcolepsy #narcolepsynotalone #projectsleep #narcolepsyawareness #narcolepsyart #narcolepsycommunity #notalone #inspiration #sleepiness #sleepdisorder #invisibleillness #chroniccondition #rarediseaseweek #neurology

Share 186 2
ciaras_journey_. Nobody tells you!!
.
Let's stop tearing each other down & help build e

Nobody tells you!! . Let's stop tearing each other down & help build each other up instead! . It's not big headed to feel good about yourself! ❤ ______________________________ Be proud of who you are 💪 ______________________________ . #psoriasis #livingwithpsoriasis #longtermcondition #chroniccondition #psoriaticarthritis #arthritisawareness #arthritiswarrior #psoriasiswarrior #psoriasiscommunity #psoriasissupport #migraine #fatigue #curearthritis #pcos

Share 38 6
Advertisement
(adsbygoogle = window.adsbygoogle || []).push({});