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thisisjuliarae. Little toddler snores sound like precious kitty purrs ❤️❤️❤️ #purrbaby

Little toddler snores sound like precious kitty purrs ❤️❤️❤️ #purrbaby #thisisjuliarae #juliabean #julicorn #anopthalmia #epilepsy #raredisease

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thisisjuliarae. She’s awake, brother decided to build her a fort! Lol #thisisjulirae #

She’s awake, brother decided to build her a fort! Lol #thisisjulirae #julicorn #julibean #bigbrothersarethebest #anopthalmia #epilepsy #raredisease

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thisisjuliarae. I am ready to start recording/interviewing families for my new podcast

I am ready to start recording/interviewing families for my new podcast... Special Needs Origin Stories Please email me at specialneedsoriginstories@gmail.com to discuss when and where to meet! I am mobile so I can come to you. Of course it will depend on coverage for Julia and Nick. I live in the Raleigh, NC area and would like to start with local families. This podcast is about families and how they became a special Needs.... family, parent, mom, dad, grandma, sister, brother, uncle.... you name it. I want to share your story of how your special child became apart of your life... the good the bad and the beautiful... Our mission is to love our story, share and grow a community through bonding over our stories, and raise awareness of special needs, rare diseases, and the medically fragile. To the special needs family... I’m sure many of you can relate to the conversations of how your friends welcomed home their typical perfect bundle of joy... or how a friend found out they were going to have a baby.... or how friends boast about their growing typical children; and felt a twinge of wanting to share in the same way, only, it’s not like we live next door to other families with special needs kids, where they understand that twinge, where they can relate to how different our lives can be... This is an opportunity to share with like families, to share your origin story.... I’ll be focusing on three main questions. 1.) Who were you before your special child came into you life, a small view into who you were and what was going on in you life. 2.) How did you find out your child was special? What is your story, was it before birth, at birth, was there an accident or adoption? There are so many ways our specials come into our life. 3.) Where are you now in your journey? Are you coping, have you adapted, is it still hard, or are you grieving? I want to share it all if you are willing! Thanks for your interest and hopefully we can start recording soon!!! #thisiajuliarae #julibean #julicorn #specialneedsoriginstories #loveyourstory #sharegrowbond #raiseawareness #anopthalmia #raredisease #epilepsy

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thisisjuliarae. Said goodbye to GrandmaMommy today!!! She’s on her way back to Alaska!

Said goodbye to GrandmaMommy today!!! She’s on her way back to Alaska!!! We love her so much and miss her already!!! #grandmommyisthebest #whatwillwedowithoutherhere #missyoualready #thisisjuliarae #julibean #julicorn #anopthalmiaawareness #anopthalmia #epilepsy #raredisease

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thisisjuliarae. This is how we roll at UNC Children’s Hospital. Lots of specialist tod

This is how we roll at UNC Children’s Hospital. Lots of specialist today! #thisisjuliarae #julibean #julicorn #anopthalmia #epilepsy #raredisease

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thisisjuliarae. She’s a crying girl! Just letting us know she is upset!!! #thisisjulia

She’s a crying girl! Just letting us know she is upset!!! #thisisjuliarae #julibean #julicorn #crybaby #epilepsy #anopthalmia #raredisease

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thisisjuliarae. I can’t stop taking video!!!! Vision therapy therapy #anopthalmia #epi

I can’t stop taking video!!!! Vision therapy therapy #anopthalmia #epilepsy #raredisease #thisisjuliarae #julicorn #julibean

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thisisjuliarae. Vision therapy, she’s working so hard!!! #anopthalmia #epilepsy #rared

Vision therapy, she’s working so hard!!! #anopthalmia #epilepsy #raredisease #thisisjuliarae #julicorn #julibean

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thisisjuliarae. 🎶sleep with one eye open🎶 🎶holding your pillow tight🎶
#sleepwithon

🎶sleep with one eye open🎶 🎶holding your pillow tight🎶 #sleepwithoneeyeopen #sombodyisalwayswatchingme #anopthalmia #thisisjuliarae #julicorn #julibean #epilepsy #raredisease

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thisisjuliarae. We don’t get that right eye open all the way very often but here she i

We don’t get that right eye open all the way very often but here she is rocking her new look!!!! #botheyesopen #thisisjuliarae #julicorn #julibean #raredisease #anopthalmia #epilepsy

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thisisjuliarae. Before and After!!! NEW EYE!!!!! #thisisjuliarae#julicorn #julibean #a

Before and After!!! NEW EYE!!!!! #julicorn #julibean #anopthalmia #epilepsy #raredisease

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thisisjuliarae. Going to be fit for her new painted eye in a few minutes!!!! #wehavebe

Going to be fit for her new painted eye in a few minutes!!!! #wehavebeenwaitingalongtimeforapaintedeye!!!! #anopthalmia #epilepsy #raredisease #thisisjuliarae #julicorn #julibean

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thisisjuliarae. Julia is really into Ninjago lol she doesn’t have much of a choice lol

Julia is really into Ninjago lol she doesn’t have much of a choice lol #thisisjuliarae #julicorn #julibean #bigbrothergetstopicktheshow #epilepsy

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thisisjuliarae. Julia has her first UTI.... poor girl! We have no idea how long she’s

Julia has her first UTI.... poor girl! We have no idea how long she’s had it or if she is in pain, hopefully we caught it early! #thisisjuliarae #julicorn #julibean #epilepsy #epilepsyawareness #anopthalmia #raredisease

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5julicorn8. Madrid is really really lovely. 🧡🦄 #Spain #Madrid #love #beutiful #c

Madrid is really really lovely. 🧡🦄 #Spain #Madrid #love #beutiful #city #unicorn #Julicorn #cute #exploringeurope #adventure #vscocam

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Greetings from the snowy kingdom! ❄️❄️🦄 #snow #winter #snowykingdom #unicorn #julicorn #cute #Harrachov #ski #cold #freezing #foggy #vscocam

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